Life Participation Approach to Aphasia
5 Core Values Video Submissions


Aphasia Access provides a free, downloadable video resource library. We invite you and people coping with aphasia to help complete the last two videos in an exciting video series illustrating the 5 Core Values (5 core values) of the Life Participation Approach to Aphasia. View the Introduction and first three videos in the series on the Aphasia Access video page (www.AphasiaAccess.org/videos). Then, choose your most effective communicators (whether by words or an adaptive method), and submit your videos no later than October 31, 2017.

Aphasia Access educational resources are routinely used in university programs, board rooms, with families and healthcare professionals eager to learn key concepts to the Life Participation Approach to Aphasia and its effectiveness in person-centered care.   


See submission guidelines and tips after the interview questions.

THE INTERVIEW QUESTIONS  

Core Value #4: Both Personal and Environmental Factors are Intervention Targets

We are looking for examples (from family members or the person with aphasia) showcasing stories of poorly adapted environments that undermined successful communication, then what would have helped. We also want to show how gathering photographs, interests and background of the person with aphasia serve as effective intervention materials.

We are also looking for stories that tell us how people with aphasia and their families have adjusted to the changes in their lives, and ways in which life has continued to be enjoyable and meaningful.

Select any or all of the questions below. 

1. Describe a situation that prevented you from talking and/or understanding by:
a. Too much background noise
b. Too much activity going on around you
c. Chairs and tables arranged in a way that made it hard to communicate

2. Describe how people helped make communication easier by:
a. Reducing background noise (music, TV, computers) and creating a setting that’s easier for conversation
b. Using drawings, photographs, or objects that apply to you and your life

3. Tell us how people have helped you to understand what they were saying? For example, they might have:
a. Spoken clearly and used basic vocabulary
b. Used gestures or pointed to drawings, photographs, or objects
c. Written down what they were saying in words that were easy to read

4. Tell us specific ways that people have helped you to express your ideas, using speech or other ways of communicating?
a. Asked yes/no questions
b. Written down words that you could choose by pointing
c. Encouraged you to you gestures, or point to drawings, objects, or photographs that personally apply to you

5. Can you describe ways that people have shown you that they care about you and what you have to say?  Tell us any stories you remember about family members, friends, and other people in your daily life.

6. Having aphasia can be very challenging.  Share a time you felt sad or lonely.  What has NOT been helpful? What HAS been helpful?

7. Having aphasia can make it difficult to do things that are important to you.  You may not be working, or your job may have changed.  You may not be able to read the same magazines or books, or watch TV and movies as easily.  Can you describe ways that people have helped you to do things that you like to do? Perhaps people have helped you to join in activities, or attend events?

Core Value #5: Emphasis Is on the Availability of Services as Needed at All Stages of Aphasia 

Select any or all of the questions below. 

1. Can you remember when you first learned that you had aphasia?
a. Tell us about your experience? Where were you? Who told you? Did you understand what had happened?
b. Thinking back, what would had helped you at that time?

2. What were your experiences with speech therapy in the hospital?  How did it help? Was your family included?  Did your nurses and healthcare team know how to communicate with you?

3. After you went home, did you continue to have speech therapy?  How did it help? Was your family included? What would have made it more helpful?

4. Are you participating in any aphasia therapy or aphasia groups now?  What do you enjoy about these sessions?  What else would be helpful to you?

5. What activities have resumed or started since your stroke?  How does having aphasia affect your ability to join in these activities?  How do people help to make it easier for you?  

6. Have you returned to work or school?  Can you describe what you were doing at work or at school before your stroke?  If you have returned, what has helped?  What has made it difficult?

7.Is there anything else you would like to tell us that we haven’t asked?


GUIDELINES

-- Discuss the questions in advance of recording, to help the person with aphasia to consider the questions, and to think about possible responses. You may need to use key words (written or spoken) to remind him or her about what you’ve discussed during the recording sessions. 

-- You will not need to record answers to all of the questions. Rather, as you discuss them, choose the best stories and examples for your recordings.

-- Ideally, the videos should be no longer than 2-3 minutes in duration per interview question, and must be submitted no later than October 31st. Try to encourage your participants to elaborate and add detail to their stories. You can ask follow-up questions and give them time to think of additional ideas or memories if needed. Your questions will not be included in the material that we use

-- By submitting a video, each party automatically gives permission for their videotaped interviews to be included, in part or full, within the final product. This teaching tool video project will be available for free download.  

-- The interview questions may be answered with spoken words and/or adaptive communication styles (drawing, writing, etc.) If a sign is held up, be sure it is visually large and easy to see (black marker), held up toward the camera for the viewer to see.  

-- As with all submissions to the Aphasia Access Core Values project, no assurances can be provided as to whether your video will appear in the final videos. If your video is selected, you will be contacted via e-mail. 

-- By submitting a video, each party automatically gives permission for their videotaped interviews to be included, in part or full, within the final product. This teaching tool video project will be available for free download.  


 HOW TO SUBMIT VIDEO

Create your homemade video according to the technical specifications listed below.      
a. Please film your video using a smartphone or tablet.      
b. Please film your video using the phone/tablet in a horizontal position →, instead of a vertical ↑ one.      
c. Please film in a well-lit room with minimal background distractions. Please move extraneous objects out of view. Pay attention to furniture and clothing choices (prefer no emblems / writing on clothing).
d. If filming outdoors, do not shoot with the sun behind the person/people talking.      
e. Please film your video in a quiet area where background noise is minimal.      
f. Video must be in .mp4 format for submission - (this is the standard format for most smartphone and tablet made videos)     
g. Please name your video title in this format:  "City, Aphasia Person Interviewed, question number" -- h. "Chicago Jon Smith 1"      

For technical help, please email videographer Sean - cagsean@gmail.com  
For content help, please email project lead Elyse - elyseshumway@gmail.com

To submit a Video please complete the form below,