Life Participation Approach to Aphasia - 5 Core Values Video Submissions

Aphasia Access provides a free, downloadable video resource library. We invite you and people coping with aphasia to help complete the last two videos in an exciting video series illustrating the 5 Core Values (5 core values) of the Life Participation Approach to Aphasia. View the Introduction and first three videos in the series on the Aphasia Access video page (www.AphasiaAccess.org/videos). Then, choose your most effective communicators (whether by words or an adaptive method), and submit your videos no later than December 11, 2017.

Aphasia Access educational resources are routinely used in university programs, board rooms, with families and healthcare professionals eager to learn key concepts to the Life Participation Approach to Aphasia and its effectiveness in person-centered care.   


See submission guidelines and tips after the interview questions.

THE INTERVIEW QUESTIONS  

Core Value #4: Both Personal and Environmental Factors are Intervention Targets

We are looking for examples (from family members or the person with aphasia) showcasing stories of poorly adapted environments that undermined successful communication, then what would have helped. We also want to show how gathering photographs, interests and background of the person with aphasia serve as effective intervention materials.

We are also looking for stories that tell us how people with aphasia and their families have adjusted to the changes in their lives, and ways in which life has continued to be enjoyable and meaningful.

Select any or all of the questions below.  

1. Can you remember when you first learned that you had aphasia?

  • Tell us about your experience? Where were you? Who told you? Did you understand what had happened? 
  • Thinking back, what would had helped you at that time?

2. What were your experiences with communication in the hospital? Did your nurses and healthcare team know how to communicate with you?

3. After you went home, did you continue to have speech therapy? What helped the most?

4. Are you participating in any aphasia therapy or aphasia groups now? What helps the most?

5. What activities have you resumed or started since your stroke? How does having aphasia affect your ability to join in these activities? How do people help to make it easier for you?

6. Have you returned to work or school? If you have returned, what has helped? What has made it difficult?

7. Is there anything else you would like to tell us about having aphasia?
  

Core Value #5: Emphasis Is on the Availability of Services as Needed at All Stages of Aphasia 


Select any or all of the questions below.
 

1. Can you remember when you first learned that you had aphasia?
a. Tell us about your experience? Where were you? Who told you? Did you understand what had happened?
b. Thinking back, what would had helped you at that time?

2. What were your experiences with speech therapy in the hospital?  How did it help? Was your family included?  Did your nurses and healthcare team know how to communicate with you?

3. After you went home, did you continue to have speech therapy?  How did it help? Was your family included? What would have made it more helpful?

4. Are you participating in any aphasia therapy or aphasia groups now?  What do you enjoy about these sessions?  What else would be helpful to you?

5. What activities have resumed or started since your stroke?  How does having aphasia affect your ability to join in these activities?  How do people help to make it easier for you?  

6. Have you returned to work or school?  Can you describe what you were doing at work or at school before your stroke?  If you have returned, what has helped?  What has made it difficult?

7.Is there anything else you would like to tell us that we haven’t asked?


GUIDELINES 

- Discuss the questions in advance of recording, to help the person with aphasia to consider the questions, and to think about possible responses. 

- You may need to remind him or her about what you’ve discussed during the recording sessions.

- It’s important that the person with aphasia speak spontaneously and not read notes aloud.

- Try to encourage your participants to elaborate and add detail to their stories. You can ask follow-up questions and give them time to think of additional ideas or memories if needed. Your questions will not be included in the material that we use.

- The interview questions may be answered with spoken words and/or adaptive communication styles (drawing, writing, etc.) If a sign is held up, be sure it is visually large and easy to see (black marker), held up toward the camera for the viewer to see.

- As with all submissions to the Aphasia Access Core Values project, no assurances can be provided as to whether your video will appear in the final videos. If your video is selected, you will be contacted via e-mail.

- By submitting a video, each party automatically gives permission for their videotaped interviews to be included, in part or full, within the final product. This teaching tool video project will be available for free download.


 HOW TO SUBMIT VIDEO

Create your homemade video according to the technical specifications listed below.      
a. Please film your video using a smartphone or tablet.      
b. Please film your video using the phone/tablet in a horizontal position →, instead of a vertical ↑ one.      
c. Please film in a well-lit room with minimal background distractions. Please move extraneous objects out of view. Pay attention to furniture and clothing choices (prefer no emblems / writing on clothing).
d. If filming outdoors, do not shoot with the sun behind the person/people talking.      
e. Please film your video in a quiet area where background noise is minimal.      
f. Video must be in .mp4 format for submission - (this is the standard format for most smartphone and tablet made videos)    
g. Please name your video title in this format:  "City, Aphasia Person Interviewed, question number" -- h. "Chicago Jon Smith 1"      

For technical help, please email videographer Sean - cagsean@gmail.com  
For content help, please email project lead Elyse - elyseshumway@gmail.com

To submit a Video please complete the form below,